I have a Fibromyalgia question .what types of treatment is good for Fibromyalgia ? I just found out that I have this and I want to know what I can do to keep going ....

Have you talked to a doctor?

I have not sat down and went into great detail as of yet... I found out I have this Fibromyalgia just yesterday. I know I must keep active .....I am more afraid since I also have CP, will I have more problems then a person that just has Fibromyalgia?

You should write out a list of questions and bring them in to the doctors office with you so that you don't forget.
Did you try a search on the internet?
I don't know anything about this disease but I hope you the best with it.

I was going to look on the net in a while . I know when I was asking the doctor about the Fibromyalgia and the CP. he state it was going to be hard to detect Fibromyalgia because I already had the CP . I went through alot of test... Ty you for your kind words on this topic.

I had read there were no conclusive test to tell if someone has Fibromalgia? Do they have them now? I thought it was just ruling out all other possibilites? Make sure you get a good thyroid screening done PD. My friend ended up being misdiagnosed with Fibro. when it was low thyroid all along.

The doctor ran many test to rule out all other possibilites before telling me that I have Fibromalgia .I also know that it runs in my family. I was just shock to hear that I have it.

PD what are your symptoms? Does your CP have any of the same syptoms?
How old were you when diagnosed with CP? Im just wondering how CP progresses?

PD;
I've had fibro since at least 1998, and even though I have tried to keep active, I notice that I am not as strong as 7 years ago. I have a very high pain tolerance and the other syndromes that go with it are more of a pain than the actual disease. The most important thing is to get pain relief and don't be afraid to demand something stronger if what you're taking isn't working. Fibro is a very individualized disease and what works for me might not work for you. Also get plenty of rest as that is the key to not having exacerbations, fibro patients often have insomnia. If your MD isn't willing to work with you for treatment, find another doctor.

Fortunately my doctor also has it and she is good to work with. Also, hope you have good insurance or a very mild case. Some people have said they no longer have the disease after some exotic treatment. I doubt they actually had the disease although remissions do occur.

Ginger The doctors claim that this Fibro has almost the same symptoms as CP this is why it was harder to determind < Sp when I was 2 this is when my parents knew I had CP.I was afraid that my CP was getting worse but that was not the case .
staflady my 3 cousins has this also and they are always drug up to the point they fall asleep while talking to you. *sad to say* I am on medications that I have to spit or I will think I am in another world lol.I don't do well on medications I get very loopy.my doctor claim he wants me to do active things to keep me going ...oh what joy.....

quote:

Originally posted by Ginger:
PD what are your symptoms? Does your CP have any of the same syptoms?
How old were you when diagnosed with CP? Im just wondering how CP progresses?

I'm not a big fan of drugs that alter your senses either. The antispasm drugs and the antidepressant that helps me sleep are taken at night only. The only "mind altering" drug I take during the day is 1 Vicodin 1 or 2 times a day. For the first few years I lived on Tylenol and Benadryl. I started the Vicodin a year ago when I ruptured 2 discs in my spine and had a LOT more pain. I'm allowed up to 8 a day but my worst days have been 3 pills. I have also developed all the associated syndromes over the years and take meds for them including an antidepressant for the "Fibro Fog" and the Irritable Bowel Syndrome, a proton pump inhibitor for the GERD. A lot of people drug themselves to have complete pain relief, but I believe that I can live with a low pain level and don't feel the need to take a lot of pain meds. Also, I'm not ready to give in to the disease and refuse to quit work and become "disabled". I also don't hang out on the fibro lists and listen to everyone complain about how bad they have it. I'm a nurse and am thankfull for what I can do because so many are in worse shape than I am.

My biggest fear is that, Fibromyalgia will cause me to be in a wheelchair with the combo of Fibromyalgia and the Cp I mean.... well the one pill I am taking had my husband not been there I believe I would had operated on myself *ha ha*.I woke my husband up and said I needed a knife to cut out my shunt because it was telling me that it was hurting ....lets just say it was a long night.This is why I split my pills in half...

I found this site and I have been reading through it http://www.drpodell.org/fibromyalgia_treatments.shtml#Confirming%20a%20Severe%20Fibromyalgia%20Syndrome%20Diagnosis%20is%20Crucial..I don't really know if it is a good site but it is a start for me

hello, i have had fibro since 99. I stay busy with things like exercise, swimming,walking,I work out with a tape....I take walks thru the woods..On my really bad days I read a book or try to sew....Take a nap.
I do not take any pills for Fibro- I was told there was none. Pills would be pain relievers.
I do have pain, I just work through it.
I also have osteo & arthuritis(sp), migraines,and bulging disks & deteriation of the membrane that covers the spinal cord all in my lower back..... there is a book called
FIBROMYALGIA & CHRONIC MYOFASCIAL PAIN SYNDROME
a survival manual by Devin Starlanyl,M.D.
written 1996..............
I really like this book- it has helped me more than anything..It tells about the symptoms, and the many steps it takes to manage your symptoms...This book says that the "official" Diagnosis for Fibro is:
the presence of unexplained widespread pain or aching, persistent fatigue, generalized morning stiffness, non-refreshing sleep, and multiple tender points. With Fibro you will have up to 18 tender points...To be diagnos with Fibro you have to have 11 of the 18 (if not all 18) tender points...
On back at neck(hairline)2, halfway from neck to shoulder2, then in towards back at shoulders(abt 3 fingers width inward from shoulders)2, close to dimples above the buttocks2, below the buttocks-outside edge of thigh2...
On Front: at neck abt collarbone2, four fingers down 2, inner side of arm-3 fingers below elbow2,inner side of knee(fat pad)2...
That is all 18 tender points...my name is shortnana.

Thank you for the info

Sheltieluvr here is another topic ruined by the BBC Hens

My cousin was diagnosed with Fibromyalgia a few years ago. If I am not mistaken they came to that conclusion not by a specific test but by slowly weeding other diseases if you will. She keeps active, but I'm not sure what meds she takes. There are times when she has flair ups and she can barely move. But the more she makes herself, the quicker the flair ups seem to subside. Sorry don't have much more info than that. I could ask, but it looks like there is already a lot of good info on here. I know seeing what she goes through, I couldn't imagine having to work through the pain...But for her the flair ups are fewer and fewer the more active she is....

quote:

Originally posted by Purfect Dream:
Sheltieluvr here is another topic ruined by the BBC Hens

Me thinks that your imagination is on overdrive.

Methinks, Ithinks the same thing. Please point out which post that was 'ruined' by anyone on this thread, rebo.

Stacey I have other issues like CP and curve spine and my doctor did many test to weed out what it might have been before stating I had Fibromyalgia.I use to love traveling but now I am lucky to go 20 miles without hurting....

quote:

Originally posted by Stacey:
My cousin was diagnosed with Fibromyalgia a few years ago. If I am not mistaken they came to that conclusion not by a specific test but by slowly weeding other diseases if you will. She keeps active, but I'm not sure what meds she takes. There are times when she has flair ups and she can barely move. But the more she makes herself, the quicker the flair ups seem to subside. Sorry don't have much more info than that. I could ask, but it looks like there is already a lot of good info on here. I know seeing what she goes through, I couldn't imagine having to work through the pain...But for her the flair ups are fewer and fewer the more active she is....